Sanfilippo

Artists Agnieszka Jaworek
Genre Object
Edition Survival 17

[…] The last of the exhibition floors is devoted to works focusing on medical issues and treating the past function of the hospital building as a key thread in reflection on the relationship between the body, art and creativity. In Sanfilippo, Agnieszka Jaworek addresses an incurable, genetic illness that has affected people in her family. The disease mainly afflicts children, who develop normally during the first years of their lives, but as the condition progresses, they gradually lose all the acquired skills. The abstract form of the work refers to a photograph of entwined jellyfish found by the artist in a book on terminal diseases; here, it becomes a metaphor of the inseparability of the patient and the genetic condition whose burden they carry. The soothing swoosh of the sea accompanying the installation, so different from the subject of the work, acts as a reminder that the life of patients suffering from sanfilippo can be full of joy despite its premature end. […]

Małgorzata Miśniakiewicz: Concealed. In: Art Reviev SURVIVAL 17. Catalogue, Wrocław 2019, p. 80-81.

photo: Małgorzata Kujda